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Tuesday, September 11, 2012

Emma Update

It has been so long since I have updated.

Emma has not been doing as well as we would hope.  Her tumour continues to grow and now the surgeons cannot operate as she would probably not survive the surgery.  We have been told that she may only have months left which is just gut wrenching to hear.  We have not given up hope though and she is currently receiving round two of radiation therapy in the hope that it will give her more time or better yet, shrink the tumour enough to have surgery.

She was very excited about the idea of going to Disneyland soon for her Make a Wish but they have called and said that they cannot do it now.  She is absolutely mortified and so very sad.  It is ok though as they have not heard the last of me :-)

On Sunday a girlfriend organised for Emma to do the Q1 sky walk in Surfers Paradise.   It is 270 metres above sea level.... I didn't have the guts to do it with her so daddy went.

That is all

Be back shortly with another update


Lizzyc said...

Hi Leanne, what can i say? I have been remembering you all in my prayers... My eyes are welling up with tears from reading this.. You all have touched my heart with Emma's braveness and courage and beautiful smile... I do know God knows all things, and I will continue to pray for you all.. Keep smiling beautiful Emma, keep living each and every day and blessing everyone in your life..I will keep coming back and hope you all know how special you are to so many even us who have never met you... with my love, lizzy..

Susi said...

So sorry to read your news. Hoping and praying the radiation will help her. It looks like she had a great day up there although it looks scary to me!

Leah said...

Always in my thoughts and prayers, she is an inspiration to all of us.

Ali :-) said...

Hey Leanne,

My heart aches for what you guys are all going through. You are all so strong - especially Emma. Your unwavering faith is an inspiration and you guys are in the prayers of many.

Absolutely disgraceful that the Make-a-Wish Foundation won't come good on what they promised. Shame on them. I hope you have some success... go get 'em!

Thinking of you all and sending much love
Ali xxx

Julie Tucker-Wolek said...

So sorry to hear the sad news my friend .... You are all in my prayers... .

That adventure Emma and Daddy went on looks like fun!!! LOVING the photos!!!!!

scrappinallie said...

Leanne, I am so very sorry to hear of Emma's prognosis. I am praying for a miracle for your beautiful brave girl. I have followed Emma's journey and she has been such a trooper through it all. My heart is with you all.

Bron said...

Sorry to hear the news is not what you had hoped for...glad that you guys are fighting on and finding ways to make life more enjoyable and memorable.xx

Denise ~ Paper Ponderings said...

Hooray for Miss Emma heading up there! Just looking at the pictures made butterflies in my stomach! She truly is the definition of courage! Praying for a miracle!

Anonymous said...

So sorry to read your update, have a little something to put in the post and was just logging on to see if the po box address was still in operation. I think of Emma often and always hope that she will find a way through all of this. My little girl who is six asked about Emma the other day too.
Can I still use the old post box number as I know you have moved. Big hugs dawn x

Anonymous said...

Am so sorry to hear you update . I always log on hoping for a small little miracle to have happened like you all I am sure. Such a hard battle. I have a little something I gave been meaning to post to Emma can I still use the same po box as before ? Big jus to you all x

Cherie said...

You and your gorgeous girl are in my thoughts and my heart Leanne, I hope the radiation will help her.

Sorry to hear that her wish of going to disneyland is not going to happen, I hope they change there mind and she gets her wish.

What a brave brave girl for doing the skywalk, she is amazing!!

Sending my love to you all
Cherie xoxo

Leanne said...

Yes anonymous we are still using the po box xxxxx

Anonymous said...

Thanks Leanne sorry cant seem to post under my profile . It's Dawn from Coffs Harbour x

Karen Shady said...

You, Emma and your family are always in my thoughts and prayers Leanne, stay strong and keep your faith. There are so many of us here in cyber space praying for Emma...

hugs to you my friend

Karen x

Nerrida Mitchell said...

Hi Leanne,

I can;t imagine the toll this take son you and your family but we will support you in prayer. I will make sure I talk to our church minister and include you in our prayers. yes God is in control and he knows best. I do understand what its like to have someone so close suffering with such an illness. I pray God gives you the strength and resources you need. Meanwhile, we'll pray the radiation works. Have you heard of Electro dermal screening? I think it is amazing! XXX Hugs Leanne.