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Friday, September 9, 2011

Spindle Cell Rhabdomyosarcoma

We finally got confirmation that it is definitely a Rhabdo.  Emma goes back in to surgery on Thursday to have her port o cath re inserted and then on Friday she gets her mask made for her radiation therapy.  She is to have 40 weeks of chemotherapy and in week 4 she will start her 6 weeks of radiation therapy.  It is going to be a long few months for the poor little munchkin but she is strong and will come out the other end even stronger. 

We have had to cancel the trip to Disneyland obviously but we will go next year once she has completed all of her treatment. 

Stuart has taken her down to Tea Gardens for a visit to see her cousins.  She has been nagging to go down there for ages so he has finally taken her.  She is going to have a ball. 

Ok, I will be back with some scrapping shares in the next week.   Been flat out getting all my Kaisercraft creations completed.  Let me just say that you are going to love the next few ranges being released.   Mmmmmm they are divine. Scrapping has become my time out from family issues and boy oh boy does it help.  Emma has asked me to do a book for her about her tumour and all the stuff that she has gone through these past 14 months.  That is going to be hard to create.........

I also want to say a big thank you to everyone for your comments.  It makes me feel so happy and blessed to have so many people pulling for us during this difficult time.

may God bless each and everyone of you xxx



Julie Tucker-Wolek said...

Oh my dearest... I am sooooooo sorry you had to cancel the trip :(

I will continue to pray for Emma...and give her a huge hug from us for her surgery day! :):):)

Love to you all... :)

Kerryn said...

I can only imagine how disappointed you all are to have to cancel the trip.
Wishing Emma all the best with the treatment ahead of her. Wishing you all the strength you need to be there for your girl during this period of treatment.

Car said...

Leanne, I am so sorry to read the news about Emma :( Sending you all much strength to get through the many weeks ahead xxx

lusi said...

Hi Leanne :-)
Thinking of you and Emma and your entire family.
Sending you so much love,
Lusi x

Toni said...

It must be a disappoint to miss the trip, but at least its something to look forward to.
Hugs to you, your family and your precious girl

Toni said...

It must be a disappoint to miss the trip, but at least its something to look forward to.
Hugs to you, your family and your precious girl

Karen Shady said...

Wishing Emma the very best for the long road ahead. I think of you guys often. So sorry you had to cancel the trip, but its something to look forward to when all this is over. Hugs to you, and you family xx

Kelly said...

Thinking of you all Leanne xxx

scrappinallie said...

Sending prayers and blessings to your brave Emma as she continues her treatment. So disappointing for you all to have your Disney trip postponed but hopefully it is something to look forward to at the end of the chemo.

Kirsty said...

Oh Leanne, I am so sorry.
That is one tough girlie you have there. Although, it doesn't seem fair that she should have to be so tough :( I will continue to keep you all in my thoughts and prayers.